Monday, November 11, 2013

Support Preemie/RSV Awareness Day on November 17th #MC

Disclosure: “I participated in a campaign on behalf of Mom Central Consulting  ( #MC )for MedImmune. I received a promotional item as a thank you for participating.”
 
 

Preemie/RSV Awareness Day is November 17th and this is an important day for our family and for alot of our viewres too. MedImmune is helping to bring awareness to this day. I have 3 children and had Gestational Diabetes with all 3 pregnancies. Due to this I was induced a week early with all 3 pregnancies. GD tends to make you have a larger baby so this is the reason they like to induce. That was not the case with me.

Two of my babies weighed about 7 1/2 pounds and my second child only weighed 5 1/2 pounds. Even though my daughter was basically ful-term they consider her a full term preemie due to her weight. The evening after I had my oldest daughter ( who is my second born), they noticed she would hold her breath and her feet would turn purple. They immediately sent her down to the NICU for observations and test. She spent 9 days in the NICU. That was the hardest 9 days. The hardest part was leaving the hospital and leaving her behind. Althought I knew it was the best thing for her. After a week of test they came to the conclusion that she had Sleep Apnea. They released her and sent her home on a heart monitor. She was doing great and really starting to breath easier and the machine wasn't going off much.

Until a month later. My son had caught a cold. Later that evening everytime my daughter would fall asleep the heart monitor would go off. If you know anything about a heart monitor it sounds like a fire alarm going off. It is so loud. We had to physically stimulate her each time to make her heart rate go back up so the machine would stop. We monitored her through the night and took her to the doctor first thing in the morning. They ran a quick test and found out she had RSV.

RSV is bascially a cold but much worse with preemies. They immeadiately told us to go to the ER at the hospital. We rushed her there to sit in the waiting room for about 12 hours. They had no rooms available at our hospital so we had to wait in the ER room for an ambulance to drive from 3 hours away in Tampa to pick us up and transport my daughter and I to the Children's Hospital in Tampa. It was a long day/night by they checked her into the hospital. They ran test for 2 weeks straight not able to find a thing wrong.

Ever since the day she was born she kind of snorted like a pig. We made comments about this to all the doctors and they said it was normal. They said it was the fluid from the birth and it needed to work its way out. Well, I didn't believe that as I was not a first time mom. It drove me nuts that no one would listen to us. The third week at the hosipital they moved her from the NICU to a private floor. We were assigned a pediatrician who was super nice. She was a mom to 4 boys. I explained that she snorted and no one would listen to us. She said sometimes you have to listen to the parents. She set up for her to be examined by a Ear, Nose and Throat doctor.



They took her in and did their test and found that she aspirated everything she drank. Which means that 80-90% of the formula she was drinking was going into her lungs. Of course that is not a good thing at all. They decided that she need a feeding tube inserted into her stomach. We were to use this for all meals. She had it for a year and throughout the year had 2 tests done. The first test she improved a bit but still needed to remain on the feeding tube. At 1 year they ran another test and she passed 100% and the tube was removed. I am happy to say she is doing wonderful and will be turning 7 in January. She is a peanut though in size but healthy and we are thankful for that.



 

Raising Preemie Awareness on November 17 – World Prematurity Day

Learn the Risks Associated with Preterm Birth

As parents welcome new babies into the world, it's a time full of excitement, joy, learning and new experiences. Most parents are able to bring their healthy babies home from the hospital soon after birth, but parents of premature babies may not be so lucky, as preterm birth can come with complications, often requiring special medical attention.

Each year worldwide, 13 million babies are born prematurely, and more than one million preemies have died just this year from the serious health challenges they face. They current rate of prematurity in the United States is 12.2 percetn -- one of the highest rates of preterm beirth in the world. Even more alarming is that the rates have risen by 36 percent over the last 25 years. Depsite these overwhelming numbers, many parents still aren't aware of the risks of being born too soon -- the leading cause of neonatal deaths. In face, a recent survey found that 75 percent of parents don't know the definition of prematurity (birth at or before 37 weeks gestation), and during prenatal care, most pregnant women don't ask their healthcare provider about the risk of delivering prematurely and the potential cosequences of preterm birth for their child.

As preemies often have specialized health needs, it's important to raise awareness of the increased risks that often come with premature birth. In the time leading upto November 17 -- World rematurity Day -- we're hoping to educate all parents about the potential risks associated with preterm births, so parents of preemies are prepared to help protect  these vulnerable babies. Since prematurity disrupts a baby's development in the womb and often stunts the growth of their most critical organs, preemies are susceptible to a variety of illnesses and infections, especially during the winter months. As we head into November, it's a perfect time to remind parents -- especially parents of preemies -- about one seasonal virus that poses a threat to infants.

RSV: A Risk to Preemies
Respiratory syncytal virus (RSV) is a common seasonal virus, contracted by nearly all children by the age of two, and typcially causes mild to moderate cold-like symptoms in healthy, full-term babies. Preterm infants, however, are born with undeveloped lungs and immature immune systems that put them at heightened risk for developing severe RSV disease, often requiring hopitalization.

* RSV infection is more likely to root in premature lungs where developing always are narrowed and especially fragile
* Preterm babies carry fewer virus-fightening antibodies -- a precious gift from mom that all infants need while their own immune systems mature after birth

Key RSV facts:
* RSV occurs in epidemics each year, typically from November through March, though it can vary by geography and year-to-year
* RSV disease is the leading cause of hospitalization for babies during their first year of life in the United States, with approx. 125,000 hospitalizations and up to 400 infant deaths each year
* RSV disease is responsible for one of every 13 pediatrician visits and one of every 38 trips to the ER in children under the age of five
* Despite being so common, many parents aren't aware of RSV; in fact, one-third of mothers have never heard of the virus

Learn the Symptoms of Severe RSV Disease:
Contact your child's pediatrician immediately if your child exhibits one or more of the following:
* Persistent coughing or wheezing
* Bluish color around the mouth or fingernails
* Rapid, difficult, or gasping breaths
* Fever (especially if it is over 100.4 degrees F (rectal)in infants under 3 months of age)

How Can I Help Protect My Baby From RSV?
RSV is very contagious and can be spread easily through touching, sneezing, and coughing. Additionally, the virus can live on the skin and surfaces for hours. There is no treatment for RSV disease once it's contracted, so prevention is critical. To help minimize the spread of RSV disease, all parents should:
* Wash their hands and ask others to do the same
* Keep toys, clothes, blankets and sheets clean
* Avoid crowds and other young children during RSV season
* Never let anyone smoke around your baby
* Steer clear of people who are sick or who have recently been sick


Speak to your childs pediatrician to determine if your baby is at high risk for RSV disease, and if so, what additional steps may be recommended. For more information about RSV and prevention, visit www.RSVprotection.com . Please also use hashtag #RSVawareness when tweeting.


 
 
 

No comments:

Post a Comment

We always love to hear feedback so feel to leave us some comment love!

Note: Only a member of this blog may post a comment.